Finnish Registry for Kidney Diseases

Finnish Registry for Kidney Diseases is a national healthcare registry maintained by The Finnish Kidney and Liver Association. The registry has an estimated coverage of 97–99 percent of all dialysis and kidney transplantation patients in Finland. With written consent of the patient, hospitals report information concerning the kidney disease to the registry, e.g., data on kidney disease diagnosis, type of treatment, laboratory variables, and comorbidity. After start of renal replacement therapy, data are updated once a year.

 

Finnish Registry for Kidney Diseases reports only statistical data, and the identity of the patient is never revealed. Personal information is handled only by the personnel of the Finnish Registry for Kidney Diseases.

 

Finnish Registry for Kidney Diseases holds data since 1964. During the first 25 years, hospitals sent data directly to the EDTA (European Dialysis and Transplantation Association) Registry in London. Since 1989 the Finnish Registry has been responsible for the data collection, and in 1992 the data of the EDTA Registry were transferred to the Finnish Registry.

 

The registry monitors the number of dialysis and kidney transplantation patients and assesses the quality of treatment by studying patient survival and achievement of treatment targets. The registry data can also be used to construct projections of the number of patients on dialysis or with a kidney transplant in coming years. This assists hospitals in resource allocation. Once a year Finnish Registry for Kidney Diseases sends its most central data to European ERA-EDTA Registry, which contains data on dialysis and kidney transplantation patients from most European countries. This enables reliable comparison of Finnish data with other countries.

 

Finnish Registry for Kidney Diseases publishes an annual report that presents the newest results. The report is distributed on the internet and read in hospitals, universities, research institutes as well as in renal registries and nephrological units outside Finland.

 

Finnish Registry for Kidney Diseases is financed by the Finnish government through the National Institute for Health and Welfare. The Board of the Finnish Registry for Kidney Diseases has members from the Finnish Kidney and Liver Association, the five university central hospitals, Finnish Society of Nephrology and National Institute for Health and Welfare.


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