Finnish Registry for Kidney Diseases holds data since 1964. During
the first 25 years, hospitals sent data directly to the EDTA (European Dialysis
and Transplantation Association) Registry in London. Since 1989 the Finnish
Registry has been responsible for the data collection, and in 1992 the data of
the EDTA Registry were transferred to the Finnish Registry.
registry monitors the number of dialysis and kidney transplantation patients
and assesses the quality of treatment by studying patient survival and
achievement of treatment targets. The registry data can also be used to
construct projections of the number of patients on dialysis or with a kidney
transplant in coming years. This assists hospitals in resource allocation. Once
a year Finnish Registry for Kidney Diseases sends its most central data to
European ERA-EDTA Registry, which contains data on dialysis and kidney
transplantation patients from most European countries. This enables reliable
comparison of Finnish data with other countries.
Registry for Kidney Diseases publishes an annual report that presents the
newest results. The report is distributed on the internet and read in
hospitals, universities, research institutes as well as in renal registries and
nephrological units outside Finland.
Finnish Registry for Kidney Diseases is financed
by the Funding Centre for Social Welfare and Health Organisations (STEA) and
partially by the National Institute for Health and Welfare as well as by the
Finnish Kidney and Liver Association. The
Board of the Finnish Registry for Kidney Diseases has members from the Finnish
Kidney and Liver Association, the five university central hospitals, Finnish
Society of Nephrology and National Institute for Health and Welfare.